Angelman answers, with the sources.

Asha does not diagnose or prescribe. She explains the evidence, cites it, and tells you when to get care today.

A seizure action plan that needs updating, and a communication device the school has not learned yet. Parents of children with Angelman syndrome carry all of it between appointments, often on very little sleep. Asha explains what the evidence says and where it comes from, and says plainly when a seizure needs 911.

Ask Asha: Seizure types and action plans Which signs are urgent

Five questions, no accountBuilt by two physiciansCited on every answer

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What families ask

Seizures, sleep, communication, and the trials worth asking about.

Angelman syndrome is a genetic condition caused by loss of the working copy of the UBE3A gene, affecting development, speech, movement and sleep. Seizures are common and can take several forms, so a written seizure action plan matters. It is sometimes mistaken for autism or cerebral palsy at first, and genetic testing confirms it.

Seizure types and action plansMy son has Angelman syndrome. Which seizure types are common, how do families build a seizure action plan, and when does a seizure mean calling 911?Ask this Sleep that will not holdMy daughter with Angelman syndrome sleeps in short stretches and wakes for hours. What does the evidence say about sleep in Angelman syndrome, and which approaches have evidence behind them?Ask this Weighing a clinical trialWhat clinical trials and emerging therapies exist for Angelman syndrome, including gene-targeted ones, and how do I judge whether one fits my child?Ask this Communication when words do not comeMy child with Angelman syndrome is not talking. Which communication approaches have evidence behind them, and where do we start with the school?Ask this

Open Asha and ask your own

Do not wait for the next visit

Go to the emergency department, or call 911, if

a seizure lasting longer than five minutes, or repeated seizures without recovery in between
trouble breathing, blue or grey lips, or choking that does not clear
a fall or a seizure with a head injury
signs of dehydration in a child who cannot say so, such as a dry mouth, very little urine, or unusual drowsiness

Do not wait to see whether a long seizure stops on its own; follow the written seizure plan and call 911.

988 call or text, mental-health crisis 911 call, danger to life or limb

For the people around them

For grandparents, siblings, teachers and respite carers

Grandparents, siblings, teachers and respite carers each hold part of a child's day, and part of the seizure plan. Asha answers their questions too, including what changes as a child with Angelman syndrome becomes an adult.

Caring for a grandchild safelyMy grandson has Angelman syndrome and stays with me most weekends. What should I know about his seizures, his safety and his sleep?Ask this Becoming an adult with AngelmanMy sister has Angelman syndrome and is about to become an adult. What changes in her medical care, and how do families plan the move to adult services?Ask this

A thin teal key standing upright in a pool of translucent ivory liquid, its ring above the surface and its four pins to the right.

Know what is normal. Know what is urgent.

Tell Asha what is happening, in your own words. She answers from the evidence, shows where it comes from, and says plainly when the next step is a clinician today.

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How Asha answers

The evidence, its sources, and the line she will not cross.

Cited

Every answer shows its sources.

For Angelman syndrome, Asha reads the Orphanet rare-disease catalogue, the Human Phenotype Ontology, PubMed-indexed abstracts and the wider biomedical literature.

Plain

She says when it is serious.

Asha does not diagnose or prescribe. She explains the evidence, cites it, and tells you when to get care today. When a symptom cannot wait, she says so first, and she gives the number to call.

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About Asha. Asha is built by DNAi Systems, founded by two physicians. Answers are grounded in a curated medical knowledge base and checked against safety rules before they reach you. Five questions, no account. Then the first month free with a card. Your conversations are private and are never sold. Privacy, safety, pricing.

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If you are in crisis, call or text 988. In immediate danger, call 911.